by Emma Ballingall
Bedridden after a stroke, a Yarragon man has failed to attract NDIS funding that reflects his escalating care needs.
Marie Freeman said her husband Darryl hadn't left his bed for the past three years and required constant care. Yet, his carer allocation isn't full-time.
A shoulder injury is evident of Marie being forced to carry the bulk of Darryl's care.
Marie says she has faced multiple barriers in gaining a change in circumstance review to increase Darryl's funding and carer allocation.
But, having waited three years, Marie's stress and frustration is evident.
"As far as they (NDIS) are aware, Darryl is still getting out of bed," Marie said. "He hasn't been out of bed for three years."
Marie didn't place the blame on the NDIS - National Disability Insurance Scheme - but urged them to provide faster responses. Through Gazette enquiries, a fresh review was recently launched. She remains hopeful but has no timeline.
"By the time NDIS finally approve this, anything could have happened," Marie said.
Darryl had a stroke in early 2018, qualifying him for NDIS funding. The stress of being his carer contributed to Marie having a heart attack the following year.
However, the need for additional funding came after Darryl was admitted to hospital three years ago. With visiting restrictions in place due to COVID, the couple were separated.
When released, Darryl refused to get out of bed.
Marie said they hadn't been able to identify a physical injury or reason behind his refusal.
Restricted to the couple's small bedroom, Marie said they recently acquired a hoist. However, two people were needed to operate and lift Darryl, a feat not always possible. Her recent shoulder injury added to the burden.
"It's very stressful," Marie said. "It's the not knowing what's coming next. Whether we will have a carer on the day or not."
"If I'm stressed out, it stresses Darryl out. If I go down, what's going to happen?" she asked.
However, despite the trials they currently face, Marie says "I wouldn't have it any other way."
"This is his home, this is where he belongs. If it kills me in the end, so be it."
"It would be good if we can get him out and about again."
Marie is hopeful Darryl, an avid Richmond football supporter and father of six, can gain additional funding.
She believes additional care would allow Darryl to venture beyond the four walls of the house, allowing walks and community interaction to boost the couple's quality of life.
News
Couple face barriers to attract NDIS review
Dec 24 2024
2 min read
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